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2004-09-24 Emily Update Emily had an appointment at Children's on Wednesday. The appointment went well, and the doctor seems to think she is doing well so that is good.I am soooooo happy to report that she will no longer be taking Depakote due to the mood swing/personality issues it was causing. Her Lamictal will be gradually increased over the next month or so and we will be going back up for another appointment in the middle of November. The doctor's over at the brain malformations clinic that she will be taking part in are reviewing her MRI and will be calling soon to schedule an appointment to meet with her. It is still beyond my comprehension how someone so "normal", someone who is for all intents and purposes wise beyond her years, someone who has no problems other than seizures has a "brain malformation". It all seems so surreal sometimes, like a dream(or more accurately, a nightmare). I think Emily gets nervous about going sometimes. She gets so hyper and just can't sit still in the car and at the hospital. I think that it is her way of expressing her nervousness which is fine. I forget sometimes that she is only 7. Hosptial trips, medicine daily, and everything that goes along with this medical concern...it overwhelms me at times so I can only imagine the effect it might have on her. If mild hyperactivity is her way of "letting it out" than I can handle that! 0 comments so far |
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